Preocupaciones de personas cuidadoras sobre la diabetes tipo 1 en adolescentes: Examinando experiencias de madres y padres hispano-descendientes
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Publicado
2025-04-30
Marleana M. Rolón-Sanfeliz
Eduardo Cumba-Avilés
Carlos J. Ríos-Miranda
Stephanie Ortiz-Domenech
María I. Jiménez-Chafey
https://orcid.org/0009-0006-7274-2670
Resumen
Quienes cuidan jóvenes con diabetes tipo 1 (DT1) sienten preocupación continua por su salud. Utilizando una estrategia de métodos mixtos al realizar un análisis secundario de datos transversales, examinamos el contenido de las preocupaciones parentales sobre la DT1 en adolescentes (12-17 años) y la relación entre preocupaciones múltiples (PM) y variables familiares y sobre la salud (VFSS). Evaluamos 65 cuidadoras/es (81.54% mujeres; 32–58 años) durante un estudio para tratar la depresión juvenil. Respondieron una pregunta abierta sobre sus preocupaciones con la DT1 en jóvenes. Identificamos los temas principales y codificamos las respuestas con categorías basadas en contenido. Usando chi-cuadrado y correlación de Spearman, evaluamos la asociación entre PM y VFSS. Las categorías y su frecuencia fueron: Comorbilidad/Funcionalidad Futura (CFF; 41.51%), Aspectos Psicológicos/Cognitivos en Adolescentes (10.38%), Asuntos Sobre Autocuidado (16.98%), Complicaciones a Corto Plazo/Emergencias (19.81%), Repercusiones en la Familia/Cuidadoras(es) (9.43%) y Discriminación/Falta de Sensibilidad (1.89%). Las PM (≥2) se asociaron con menor adherencia al ejercicio, mayor uso de psicotrópicos y menor expresividad y cohesión familiar. Quienes tuvieron preocupaciones sobre CFF tenían hijos/as con tasas mayores de descontrol glucémico y menos prevención hipoglucémica. Nuestros hallazgos sugieren que las complicaciones diabéticas y el cumplimiento con el autocuidado son las principales preocupaciones parentales sobre la DT1 en adolescentes y que tener PM se vincula con VFSS relevantes.
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Keywords
adolescente, autocuidado, clima familiar, complicaciones de diabetes, preocupación parental
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Amburgey, D., Odonnell, H., Gomer, T., Reznick-Lipina, T., Majidi, S., & Driscoll, K. (2020). 2251-PUB: Assessment of fear of hypoglycemia in a large, clinical sample of fathers of children with type 1 diabetes. Diabetes, 69. https://doi.org/10.2337/db20-2251-PUB
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Anderson, M., & Tulloch-Reid, M. K. (2019). “How am I gonna cope?”: Caregivers of adolescents with diabetes in Jamaica. Chronic Illness, 15(4), 293–305. https://doi.org/10.1177/1742395318769373
Bozbulut, R., Küpçü, Z., Döğer, E., Çamurdan, M. O., & Bideci, A. (2023). The effects of parental monitoring on the quality of life and diet quality of adolescents with type 1 diabetes. International Journal of Diabetes in Developing Countries, 43(2), 281–288.
https://doi.org/10.1007/s13410-022-01085-0
Buckloh, L. M., Lochrie, A. S., Antal, H., Milkes, A., Canas, A., Hutchinson, S., & Wysocki, T. (2008). Diabetes complications in youth: Qualitative analysis of parents’ perspectives of family learning and knowledge. Diabetes Care, 31(8), 1516–1520.
https://doi.org/10.2337/dc07-2349
Cruz-Martínez, C. P., Trifilio-Martínez, M. S., Matos Melo, A. L., & Cumba-Avilés, E. (2017, March 31). Predictors of Depressive Symptomatology in Caregivers of Adolescents with Type 1 Diabetes and Depression [Oral presentation]. 1st Student Congress of Psychology, Universidad Metropolitana, San Juan, PR.
https://www.researchgate.net/publication/382395314_Predictors_of_Depressive_Symptomatology_in_Caregivers_of_Adolescents_with_Type_1_Diabetes_and_Depression
Cumba-Avilés, E. (2017). Cognitive-Behavioral Group Therapy for Latino youth with type 1 diabetes and depression: A case study. Clinical Case Studies, 16(1), 58-75. https://doi.org/10.1177/1534650116668270
Cumba-Avilés, E., & Feliciano-López, V. (2005). Formulario de Entrevista Clínica-Padres (FEC-P) [Parental Clinical Interview Form (PCIF)]. University of Puerto Rico, Río Piedras Campus.
Cumba-Avilés, E., & Sáez-Santiago, E. (2016). Research program on type 1 diabetes and youth depression in Puerto Rico. Puerto Rican Journal of Psychology, 27(1), 44-60. https://repsasppr.net/index.php/reps/article/view/277/278
Dashiff, C. J. (1993). Parents’ perceptions of diabetes in adolescent daughters and its impact on the family. Journal of Pediatric Nursing, 8(6), 361–369.
Dashiff, C., Riley, B., Abdullatif, H., & Moreland, E. (2011). Parents’ experiences supporting self-management of middle adolescents with type 1 diabetes mellitus. Pediatric Nursing, 37(6), 304–310.
https://www.researchgate.net/publication/221758530_Parents'_experiences_supporting_self_management_of_middle_adolescents_with_Type_1_Diabetes_Mellitus
Dashiff, C., Vance, D., Abdullatif, H., & Wallander, J. (2008). Parenting, autonomy and self-care of adolescents with type 1 diabetes. Child: Care, Health and Development, 35(1), 79–88. https://doi.org/10.1111/j.1365-2214.2008.00892.x
DeFife, J. (2009). Effect size calculator and effect size conversions [Statistical program]. Emory University. http://web.cs.dal.ca/~anwar/ds/Excel4.xlsx
Djiofack Kentsop, H. B., Zarowsky, C., & von Oettingen, J. E. (2024). Type 1 diabetes care delivery in Yaoundé, Cameroon: Social and political representations. African Journal of Primary Health Care and Family Medicine, 16(1), a4229. https://doi.org/10.4102/phcfm.v16i1.4229
Driscoll, K. A., Raymond, J., Naranjo, D., & Patton, S. R. (2016). Fear of hypoglycemia in children and adolescents and their parents with type 1 diabetes. Current Diabetes Reports, 16(8), 77. https://doi.org/10.1007/s11892-016-0762-2
Dunne, J. L., Sutphin, J., Bushman, J. S., Fontanals-Cirera, B., Coulter, J. R., Hutton, C. T., Koralova, A., Ervin, C. M., & Mansfield, C. (2019). 1364-P: Parent and physician preferences for screening in type 1 diabetes (T1D). Diabetes, 68(Supplement_1), 1364-P.
https://doi.org/10.2337/db19-1364-p
Ersig, A. L., Tsalikian, E., Coffey, J., & Williams, J. K. (2016). Stressors in teens with type 1 diabetes and their parents: Immediate and long-term implications for transition to self-management. Journal of Pediatric Nursing, 31(4), 390–396.
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Cómo citar
Preocupaciones de personas cuidadoras sobre la diabetes tipo 1 en adolescentes: Examinando experiencias de madres y padres hispano-descendientes. (2025). Revista Puertorriqueña De Psicologia, 36(1), 82-99. https://doi.org/10.55611/
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Cómo citar
Preocupaciones de personas cuidadoras sobre la diabetes tipo 1 en adolescentes: Examinando experiencias de madres y padres hispano-descendientes. (2025). Revista Puertorriqueña De Psicologia, 36(1), 82-99. https://doi.org/10.55611/